SATURDAY - DECEMBER 29, 2012

We are having a great Christmas and New Year's.  Christmas eve with Joyse who served wonderful fondue,   arrival of All kids, grand and regular, on Christmas Day, and we had the traditional dinner for 14.  Glad we have the new room.  Since then we have been hiking and trying to walk off any unwanted lbs.  Cam and kids left this morning and Amy and Kevin will depart tomorrow.  Amy and Kevin's friends from Houston, Roger and Catherine, came to visit and are staying at the Inn at Brevard.  Good to see them. 

I am doing fine and cells seem to be hanging in there.  The loss of weight which was caused by fluid retention has really given me energy and a normal existence.

Happy New Year and may 2013 be good for all of you.

"There must be an APP for a cure for AML".  Doug

SUNDAY - DECEMBER 23, 2012

"Ain't it funny how time slips away?"    I thought Christmas was on Wednesday so spending this afternoon catching up instead of watching the Redskins! Also got to buy some new britches as what used to hold them up is gone.

We have had a great week.   Scott Johnson, NGC friend, visited from VA Beach. Sure is good to see old friends.  Friday, we had a wonderful Christmas Party on our new Carolina room with our Brevard friends.  I have a new group to tell old stories to.  Most old friends had heard them several times.

Doc says all counts are good for now.  We are hopeful that all will remain good for the next Duke visit in Jan. 

Ali, Joyse's daughter will be here tonight and we will celebrate her 29th birthday.  It is going to be great to have this family together.

IN summary, I am very blessed to have a wonderful family, which will be here by Christmas night,  wonderful relatives, and friends who contact us often. 

"God bless us, everyone."   Tiny Tim

Merry Christmas

Saturday - December 16, 2012

We visited Duke this week in Durham and, no, Coach K did not summon me for advice.  However, the latest plan on treatment is for me to have one more round of chemo via stomach shots which will begin on 7 January 2013.  After that, I will go back to Duke on 16 Jan and have another bone marrow biopsy which should give us information on whether the leukemia cells are down to less than 5%.  If not, I will get more chemo through an IV at the hospital for 30 days (5 days of doses and 25 days of recovery monitoring).  Either way, I will then consult with the Bone Marrow Transplant Team who will decide if I am a viable candidate.  When the transplant which takes only a couple of days is complete, I will stay near the hospital for at least 90 days for daily monitoring.  We understand that various apartments or condoes are available for use for patients being monitored.

An interesting, to me, side effect of medication that I been taken to relieve the fluid retention which was putting pressure on the heart is that I have lost 25 pounds and have good energy and no shortness of breath.  Guess I will have to start taking out the garbage again. 

So, we have a plan.  

 

Jane, Joyse, and I went over to Asheville last night to see Ike perform at Asheville Gymnastics where he coaches and participates in their Adult Gymnastics Program.  It was a great show with all gymnasts included.  Ike did a solo floor exercise performance which was as good if not better as he performed while in high school.  His routine included a double and other impressive flips which resulted in gasps from the crowd.  His still ring performance was also impressive as he has really gotten his body in shape.  We all had dinner at Tupelo Honey Cafe after the performance.  At 31, he might want to slow down the show a little, but he has certainly still has the talent.

Here is a picture of skinny Doug/Papa with hair.

"Pray for intestanal fortitude, work hard, and keep the faith.  Oh and pray for good luck, you're going to need it."  Jerry Reid, Musician

Saturday - December 8, 2012

SUMMARY:

"MWM (Married white male) ; age 68; two artificial knees, one good - one not so good; one bad right rotator cuff; healthy installed pig valve and one bypass; full head of hair;  diagnosed with leukemia - currently answers to name of Lucky.  Any takers?"

Last week there was some concern about fluid retention and harm to the heart.  But there is good news from the cardiologist.  After three days at Mission Hosp for fluid withdrawal and removal the Echo cardiogram shows improved lung effusion and greatly improved heart pumping function up from 20% to 45%, normal is 55%. Now after this "toad in the road", we can go back to concentrating on AML.  BTW I have lost 25lbs with the aid of Lasik.  We will visit Duke on Tuesday to discuss future treatment possibly to begin in mid-January.

It is good to be back on track and I am feeling alot more normal.  Yesterday, we went out and cut fresh Christmas trees on a mountain-side outside of Brevard for us and Joyse.  The smell of blue spruce in the Carolina Room starts our Christmas Season. 

QUESTION:  "If you could live forever, would you and why?"

ANSWER:  "I would not live forever, because we should not live forever, because if we were supposed to live forever, then we would live forever, but we cannot live forever, which is why I would not live forever."  (Miss Alabama, 1994 Miss Universe Pageant)

SATURDAY - DECEMBER 1, 2012

It has been an interesting few days.  Last Wednesday Jane and I visited Leukemia doctor at Duke.  She would like for me to go for another  round of chemo at Duke beginning Jan 15 and last once again about 30 to 40 days, However, she was more concerned about my fluid retention so our Brevard Hematologist sent us to Mission Hosp on Thursday for fluid removal around lungs and belly.  After seeing how much fluid I had, he recommended that I be admitted for further fluid treatment so that I "could be dried out completely."  That could be misinterpreted.

The fluid as it turns out is coming from the heart so I have some new drugs and continuing the fluid withdrawal through meds.  I was given an echo cardiogram which showed a leak in the mitralvalve.  The replaced aortic valve is in good shape but because of the leak my heart is not pumping as hard as it should,  The new meds are supposed to heal.  Just a toad in the road to the other treatment.  For those who want to know the new drugs are Aldactone and Diovan.  It is possible that previous chemo may have caused the heart problem.  This is  officially called Congestive Heart Failure,  but this family does not recognize the term "failure" so let's ignore it or call it something else as it is easily curable with drugs.

Jane and Joyse have been great even though they left yesterday to host "Girls on Grapes" which is a great crew of women in Brevard whom we have met.    The porch is complete so it was a great place to party.

"I hope I didn't bore you too much with my life story" Elvis Aaron Presley

SUNDAY - November 25, 2012

No real new news on leukemia since last week.  Got rid of some fluid retention so feeling much stronger.  Our Doc has arranged for me to see an oncologist at Duke on Wednesday so we could have some news as to what's next, treatment wise.

We had a wonderful Thanksgiving with all the children, grsndchildren,  Joyse, and Ali.  We had lobster at home on Thanksgiving and traditional thanksgiving on Friday at Joyse's.  She show can cook.  Ike brought a new friend, female type,  for lobster who put up with our family rowdiness.

"Watch out for those mountain women, they travel the same path as the bears."  Philosopher at ABC store heard by Steve Johnson.

Tuesday - November 20,  2012

Just a quick note on recent tests and what's next.  The bone marrow biopsy results showed lingering MDS, not at the AML level which is about 10 -15% cancer cells,  No leukemia blasts increase.

CT scan showed normal liver and spleen but fluid in bottom of lungs and gut.  Vidaza (current chem)can cause fluid retention.

PLAN:  Antibiotic for cough; Lasix and Potasium to remove fluid;  and appointment at Duke on Nov. 28th to review treatment and possibly add an experimental drug called Revlimid.

We are hopeful and so glad that leukemia has been held at bay.

Our porch is now an official closed in Carolina room which we are really enjoying.

 

"We will keep trying to make chicken salad out of chicken s----." UNK

Saturday - November 17, 2012

The news is that white cells and immunity are still low so doc did a bone barrow biopsy to see what is going on.  It could be a reaction to chemo or we could need to add additional additives to the shots.  Either way we will see doc on Monday withe results and next steps.  Some fatigue has set in and it's not the kind of jungle green camo type.  I actually feel OK just pleasantly, " sit in a lazy boy rocker tired. "

I will send out another blog either Monday or Tuesday with up date from the doc.

Plans are in full swing for our completed porch and a Big Family Thanksgiving.

"Courage is being scared  and saddling up anyway"  John Wayne

Saturday, November 11, 2012

I had a great day at J.P. Nix Elementary School in Cleveland, GA. where my granddaughter, Laurel, goes to school.  The  program honored veterans through clapping and cheering as we "marched" down the halls and a variety of patriotic songs sung by the kids and a dramatic reading by none other than Johnny Cash.   The first picture is me greeting Laurel during the stroll through the school.  The second is Laurel, Clay,  Jane, and Doug in Helen, GA on the banks of the Hooch after the ceremony.  The teachers and administrators of the school really did a great job and the kids were definitely impressive.

Jane and I drove down Wednesday afternoon and stayed at a B & B at Nacoochee Valley after I received a dose of platelets as they were getting low.  This should get them back to normalcy before the next chemo shot round.

We arrived back home on Thursday afternoon so that Jane could continue to supervise the installation of windows for the back porch or Carolina room.  Great week.

"Is it ignorance or apathy.  I don't know and I don't care.  Jimmy Buffett

Saturday - November 3, 2012

Sorry about last Saturday but I was having too much fun with our children and grandchildren.  Brevard hosted the annual Halloween Street Festival which consisted of many fun events for kids and families.   Clay, Hulk, Laurel, Smarty Pants. Julia, injured cheer leader, and Sara, Little Red Riding Hood all participated in the costume competition, parade, and pumpkin roll down Jailhouse Hill.  Most pumpkins did not make it to the bottom where the target was located, but Clay's did.   Very accurate winner.  Because Brevard is located in Transylvania County, Halloween is a big deal.

Now the more mundane stuff.  Numbers continue to vary with some up and some down,  Good news that tests this week showed immune system (ANC) and white cells improved while platelets not so much.  I am back to once per week blood tests for the time being.  Probably no more shots until after thanksgiving.

I am looking forward to visiting Cleveland, GA on Thursday to attend Laurel's school Veterans Day celebration.  The kids put on quite a patriotic show and the Vets march down the halls.  Last year no one fell down.

We have begun enclosure of our back porch to make it a Carolina Room.  We are looking forward to the coziness of the enclosure with lazy boy, big TV, and gas logs. 

Thank you for continued cards, notes, and prayers.  They lift me up.

"I've been dealt a bad break, but I have a lot to live for,"  Lou Gherig

Friday - October 19, 2012

Had blood count check yesterday - some up - some down.  I will start another round of gut shots on Monday.  That will the third of the predicted six.  Feel good.

We had  a quiet week here in Brevard.    I played golf once and plan to play a round with Rick Ciordia on Monday.

Joyse's Florida friends and neighbors arrived today in a long RV.   Jane is busy cooking cornish game hens as they are joining us for dinner tonight.  It will be great fun to see Ferdie, MaryLou, Mike, Mitzy, and Jan as we have visited with them many times in JAX while seeing Joyse.

 

We are going to Dallas, NC tomorrow to see Sara Peters ride in a horse show.  I did not know of Dallas, NC but we will find it via GPS.  Sara earned all of the costs of this show by working in the stables where she takes lessons. 

"A sense of humor is a major defense against minor troubles"   Mignon McLaughlin

Saturday, October 13, 2012

Had a great visit from Gail, Jane’s sister, Nancy, Jane’s cousin, and Paula, Nancy’s daughter.  We all went to see waterfalls and clouds.  Really appreciated their visit. Enjoyed it very much.

 

Saw the doc this week and the counts are OK.  We are just monitoring at this time and will have shots again the week of 22 October. 

 

Looking forward to the Peter’s visit today. 

 

“ I want to rock and roll all night and party every day.”  KISS

Saturday October 5, 2012

I am a lucky person to have this kind of support.  Thanks Amy,  Kevin, Julia and Sara for your participation in the Light the Night Walk.  What a team!

I appreciate all the support from my family and friends.  Never thought I would be the recipient but it makes one feel positive about the future. 

No blood readings this week so I must be good.  I feel great and have been hiking and playing golf.  Jane, Joyse, and I did a fairly strenuous hike off of the Blue Ridge Parkway in an area called Graveyard Fields (of all places).  The meadow was filled with bright red blueberry bushes and orange trees.

Thursday night we went to dinner at one of our good restaurants in Brevard and listened to Shannon Whitworth pick and sing.  She is a great vocalist and local talent.

"Think of life as a terminal illness, because if you do, you will live it with joy and compassion, as it ought to be lived."  Anna Quindlen (Author of "A Short Guide to a Happy Life")

Sunday, September 30, 2012

Oops,  Saturday came and went and I forgot to publish the weekly blog. 

It has been a great week here even though it was gut shot week for me.  Again, blood counts are so good that the doc says he will not take another reading until 11 Oct.  The only side effect is a sore tummy which heals in a few days.

This great week included a visit from Taylor and Anne Manley and friends.  Jane and I had lunch Monday in Brevard with Taylor, Anne, Mike, Nancy, and Carol Anne.  Great fun, food and conversation that one does not get in the hospital. 

Taylor and Anne returned on Wednesday and stayed with us until Friday.  We hiked to Skinny Dip Falls but did not.  Taylor and I played 18 holes of golf on Thursday while Jane and Anne went shopping in Hendersonville. After that we had cocktails at Joyse's new home and then had dinner out.  Thanks for the visit, we enjoyed it.

NGC friend, Larry Stover, called.  I hope we can visit againg soon. 

Jim Melton made his periodic check which I appreciate.  I'm doing well, Jim.

All I can say is that I feel and act normal as I have always been.  This has been verified by Jane who states that I am as much of a pain as in the past.


"Doing nothing is very hard to do--you never know when you're finished."  Leslie Nielson

Friday, September 21, 2012 Once again all blood count numbers are excellent and the docs are amazed. Next week I start another round of gut shots which are designed to continue to reduce the leukemia cells. It might lower the other levels for a while but so far this has not happened. Lewis Brewer, old high school friend, and his wife Judy, stopped by Brevard this week to visit. It was fun to see them. I am humbled by the number of old friends that have expressed their care and prayers. I do not feel sick enough to deserve it. We are having a great week. Yesterday we visted Amy and Kevin in Huntersville, NC and watched Julia as a cheerleader for her middle school football team. She is impressive. WE are very proud of her as she is an excellent tumbler and the team is exceptional. Sara also is excelling in her first year of middle school and is very enthusiastic. We are proud of both. Sara is excelling at horse back riding and works at the stables to earn points to save her Daddy money. We are now in Commerce, GA near the arena where Laurel and Clay will compete in riding competion tomorrow. It is a great event in Homer, GA which we all enjoy. Laurel is an up and coming rider and so is Clay. Marsha and Ron go to a great deal of effort to offer this opportunity to these two. Thanks to them. "It is great to be on the road again" Willie Nelson

Saturday - 15 September 2012

All is well.  My blood count numbers remain excellent i.e. ANC, the immunity score, is above  average.  I also had to go to Ace Hardware to buy a leather hole punch in order to modify all belts.  Hell of a diet.

We are headed to Asheville to celebrate Joyse's birthday at the Grove Park Inn,  Ike and I will then go downtown to the Brewgrass Festival (that is not a typo).  Ike got 2 free hundred dollar tickets from his work as they did all the signs and shirts for the event.  It should be interesting.  In Asheville, tattoos are acceptable substitutes for clothing which sometimes is not pretty.


"The way I see it, if you want the rainbow you gottta put up with the rain."  Dolly Parton

Saturday - 8 September 2012

Happy Birthday, Ike!  32 years ago today we were blessed with a baby boy who has been mostly a joy ever since.  We are very proud of you.

It has been a great week.  Jane and Ike harvested 4.5 gallons of honey from our hives. It must have been my good supervision.

Also, all my numbers, blood counts. are in the normal range which made the Doc and me very happy.  If they continue to remain up over the next 3 or 4 months he will do another biopsy to see if a a marrow transplant is in order. He believes the chemo is still working because it is too soon for an impact from the current rounds of Vidaza to be reflected in the blood counts.  This is good news so we are cautiously optimistic.  We still will not know anything for certain for several months but for now all is good.  Chemo head is gone as some of it was caused by low blood pressure.  I am now off most all high BP meds.

We are headed to the Mountain Song Festival today at the Brevard Music Center for some good bluegrass sounds, beer, and bar-b-que. 

Had a great visit with Jim and Sandy Melton who drove up from their new East Coast home in Cumming, Ga.  What a great visit.  Thanks for driving up guys.  Also, had a call from Bobby Briggs.  It is wonderful to hear from friends.

"Doubt has never changed anything, belief changes things." Amish Proverb again,

Saturday Update - 1 September 2012

As of today, I have finished 5 days of Vidaza gut shots with no side effects except sore abs.  Also, I am off of all blood pressure medicine and lost over 10 pounds but I am not sure I would recommend this diet or regimen.

The new meds given by shot to the gut are designed to knock blood count down and then allow them to build back up to a higher level.  Shots will be given for the first week of the next six months. 

Cam, Scott, Laurel, and Clay are coming over for Clay's fourth birthday today.  We plan to take him to the big toy store Brevard, O.P. Taylor's, his request, and then go on a waterfall hike.  Transylvania County where we live has over a 1000 waterfalls in the national forest surrounding Brevard.

I had a great surprise when I arrived home from the hospital.  Amy, Cam, Ike, Ali, and Joyse had all pitched in and bought me a large screen TV for the back deck of the house.  It was a perfect homecoming gift as football season is here.  Thanks to every one.  Now Jane can watch NCIS inside while I view the Redskins or Panthers outside.  I have had to switch some allegiance to NC but cannot quit the Redskins after living near them for 25 years. 

Thank you all for your prayers and support.

"Short hair is quickly brushed." - Amish Proverb

Saturday Update 25 August 2012 

Visited with main Doc on Thursday after dismissal from hospital.  My numbers were exceptionally good i.e. Hemo 10.0, Platelets 265 up from 56, ANC 4.24 up from 2.2.

I will begin demethylating treatment on Monday 27 August as an out-patient here in Brevard.  It consists of  5 days of Vidaza injections then 3 weeks off and repeating this for several months.  This drug attacks leukemia cells in a different way by changing cell DNA  which can kill the cells.  Routine blood tests will be used to monitor progress with bone marrow biopsies done periodically.  It will be 4-6 months from now before we will know if Vidaza has done the trick.  So we are in a wait and see pattern holding great hope for a sucessful outcome.

When I asked Dr. Pollack if the 40 days at St. Joe's was a waste of time, he said, "no."  Result of total remission was not obtained but cancer cells were greatly reduced (55% down to 15%).  Platelets jumped from 50's to over 250.  Also when I arrived at the hospital, I was classified as a compromised patient (meaning I had a very low immune system) but my ANC reported on Thursday was well within the normal range.  All good positive results.

It is my intention to post on a weekly basis in the future on Saturdays unless there is a significant piece of news.  I want to thank everyone for their support and prayers during this period.  The cards, notes, e-mails, blog comments have kept me going.  Thank you!

I must sign off as the Redskins are playing their last pre-season game and I need to see how our new man "RG3" does as QB.  Go Skins!!! 

Day 40 - August 17, 2012

Ali Witheridge,  Joyse's daughter, flew in from San Diego, for the weekend.   She brought good luck!

I am being dismissed and will head home at 1600.   Needless to say,  I am ready.  


I will not be recording anymore on the blog unless there is something to report.  I meet with the hematologist on the 23rd to discuss status.

Thank you for your prayers and thoughts.

"And the turtles,of course...all the turtles are free ,as turtles and,   maybe, all creatures should be."  Dr. Seuss.  "Yertle the Turtle" 

DAY 39- August 16,  2012

Progress continues as ANC rose to 2.4, platelets doubled to left field, and red cells hung on by a spot .

Ike stopped by with lunch.  Some Nurse from another floor ha dropped be earlier and asked if I  was Ike's dad.  She then left a snack sack for him.  Not sure if he is spending his whole lunch hour with me.

Jane quizzed all doctors and nurses thoroughly and insured that they knew my past medical history.  I listen as they talk about ,"Him"  and "He".

"Believe in yourself and never, ever give up."   From a get-well card sent by Lewis Brewer

Day 38 - August 15, 2012

ANC continues its climb upward as this morning it was 2.0.  I now have an immune system for the first time in three weeks.   The docs believe that they have the infection under control even though it is not a quick fix.  The med team has converted all that was coming in by IV to pill form which is a sign.

Joyse hung with me today along with a visit from Ike.

"The question isn't; who is going to let me; it's, who going to stop me."  Ayn Rand

Day 37 - August 13, 2012

ANC continues to climb and was measured at 1.4 this morning.  This is a real good sign but there is concern about an infection possibility caused by the port system installed in my chest which has now been removed.  It was nice not to be punched again for each IV procedure, but now I am on the old method.   So far the nurses have been experts at IV installing.    When the infection is terminated,  I will probably be able to head home.

Rick Ciordai,  Griffin High School friend who lives near here dropped in.  He says the weather is perfect for golf.

Amy drove over for a visit and brought baked goodies for the nursing staff.  Jane and Amy then went  to Ike's graphic design workplace for a tour.   They were very impressed. 

Joyse had the morning shift.  Always a smile.

"Dream as if you will live forever.  Live as if you will die today" -James Deane  (He did)

Day 36 - August 12, 2012

Dealt with minor "toads in the road."  The wonderful port that was installed that allows meds to be installed through the IV along with any drawings without punching any new holes started to get infected so they  removed it.  I now have 3 real IVs working in different lines.

No other real news except that I feel stronger.  Jane, Joyse, and Ike continued their visits.

"Either you run the day or the day runs you."

Day 35 - August 12, 2012

Had some good news worth sharing.  The Absolute  Nutraphil Count  (ANC) is a measure of the amount of immunity one has.   I have been at 0 since 17 July  as this what the chemo was supposed to do.  Jut didn't kill enough of them.  So yesterday I came out of the slump to a 0.1 and today a whopping 0.4!  Normal is 1.5 but they will set you free if you can obtain a 0.5 and keep climbing. Sometimes this will go up and down during the process.

Jane and Joyse shifted off as usual.  They are really a great support group and I do appreciate the clean clothes each day.  It is good to have someine to talk to as most residents  do not seem to be interested.

"Obstacles are those frightful things you see when you take your eyes off the goal,"  - Henry Ford

Day 34 - August 11, 2012

In the stage of waiting for counts.  I may even record some later when they really start.

Beth,  NGC friend and Karen, also my friend as well as Beth's.   They live on Tybee Island, GA and had been on a trip to Boone.   Great yo see ya'll.

"Life is like riding a bicycle.  To keep your balance you must keep moving.".  Albert Einstein 

 

DAY 33 - August 10, 2012

My friemd, Steve Johnson,  departed for his home on the ocean.  Thanks, Steve for everthing expecially taking the long trip.

We had a concert in the family room here.  Lisa from Brevard brought her mother over plus Jackie, her friend.  Lisa's mother played her harp and the piano.  I think we heard all the old hymns.   It was what I needed.  Jane and Joyse kept me company.

Other News:

Dr. Polluck,  my hemotogist,  met with Jane and I to clarify options.  He says there are very few patients around who have done 3 rounds of chemo which convinced us.

Here is the plan:

1.  Remain in the hospital until blood counts go up and immunity re-bounds.  Approximately two weeks.

2.  Go home and begin de-methylating medication regimen.  Five days of IVs of Dacogen (latest and greatest new medication).  Will attack bad cells in a new way, different from chemo's attack.  Goal is still remission.

3.  Bone marrow biopsy will be done several weeks from now to see if chemo has reduced percentage of bad cells further.

 

Day 32 - August 9, 2012

This  is not good news but it could be worse.  The last round of chemo failed to take the leukemia cells down to the necessary 5%.  First time was 20% and this time 15%.  We will have more information to work with tomorrow when we discuss the situation with Dr. Polluck. my hemo doc. Polluck is a forward thinking young man who may have something else plus more infor on the above.  Dr. House?At this point, as we understand it, there are 3 options.

1.  Wait 7 days and do another biopsy to see if chem might still be working on killing leukemia.

2.  Do another chemo round with a different chemical.

3.  Let cells build up for a while and do maintenance to keep %. in range.

4.  Go home and drink ;)

"You can tell when you're on the right track.  It's usually uphill,"  Amish Proverb

Day 31 - August 8, 2012

Still waiting on the results of my bone marrow test which was taken yesterday.

Strange day as I developed a slight fever and the shivering shakes.   So the nurse whipped out demerol which should knock me out.  not sure what all those people who take temps, ask strange questions, and try to wake one up will do.

Got a cool letter Julia and Sara and their neighbors,  Mary and Casey.  Thanks guys you all are very talented

'Life's hard.  It' even harder when you're stupid"   - John Wayne

"

Day 30 - August 7, 2012

Jane and thw Brevard Methodist preachers stopped by today.  They seem to have good timing.

We prayed for the same thing.  I appreciated the visit.

I started the day with a healthy shot of morphine with a benedrill back.  I am still not sure if it 0630 or 1830. 

"A good thing  to remember is that somebody's got it worse than I have."  Joel Osteen

Day 29 - August 6, 2012  

As I have  mentioned previously,  tomorrow is the day of  the important bone marrow biopsy which will determine the next step.  It will be about two days before we know the results as the marrow has to go to Williamson Labs once again.

Ike made his daily visit which I appreciate very much.  Jane and Joyse also visited and Jane bought chocolate pound cake for the nursing staff.  Brownie points never hurt.

"It takes a worried man to sing a worried song, I'm worried now but I won't be worried long."  The Kingston Trio

Day 28 - August 5, 2012

I received 2 units of blood today.  It seems as though I am getting more than my share, so if anyone is inclined to donate to a local bank please do so.  It will not go directly here but there is a need everywhere.

I enjoyed a special visit from Jane's sister,  Aunt Gail,  Jane's brother, Taylor, and  Gail's son, Chuck Hammock.  They are special relatives who mean a lot to me. 

Amy, My oldest daughter,  and Kevin, Amy's hubby,  brought a Hazard Deluxe Putting Mat so that I can practice putting which I sorely need to do.  Thanks for the mat guys.  The nurse of the day did not believe I was the patient when she came in and I was up putting.  Amy and Ken also brought some  of their Home Made Uncle Paul's Bar-B-Que.  Best meal I ever has in a hospital.

"It's not whether you get knocked down, it's whether you get up."  Vince Lombardi

Day 27 - August 4, 2012 

I seem to be a regular customer of platelets as  I was the recipient of  more today.  A bone marrow biopsy is scheduled for next Tuesday.  That will represent a real milestone in this process and will determine what is next.

 

Cam visited today and assured that I am walking as she requires.  Cam is my cheer leader and has got that killer smile.  She is a physical therapist and good at what she does.

Ike, son,  is camping in the woods with friends so a little prayer might be in order.  The rangers do have night vision devices.

"If you ask me what I came into this life to do, I will tell you: I came to live out loud."

Day 26 - August 3, 2012

Three shiny bright stars lit up my  hospital room today. The shiny stars are Amy, daughter,and my granddaughters from Huntersville, NC which is near Charlotte.  If ever one needed a reason to keep going,  I saw three of them today. Thanks for the visit, hope you found your new school clothes on tax free day in NC.

All counts were good today so no blood or platelets.   All I did was enjoy the visit.  Joyse kept me company after the visit.

"Grandchildren are  the dots that connect the lines from generation to generation." - Lois Wyse

Day 25 -  August 2, 2012

Well,  July was a blur and August is shaping up that way.  I received two units of blood today along with a serving of platelets for dessert.   Otherwise just a normal hospital day.  "Are you sleeping okay?"

Jan, Joyse, and  Steve stopped by today.  Steve is researching the possibility that  the VA might declare that MDS and/or AML  could be a result of exposure to Agent Orange in Vietnam.  We will declare and see  what happens.  Steve has copies of cases where the declared disability was approved.  It sometimes takes years for a resolution.

"Go along to get along"
"Roll with the flow"           - Words to live by in the hospital.  Often stated by Doug Wheeless

Had a nice pleasant visit with Steve and Danielle today.  It was good to see them both.  Also Joyse and Jane stopped by.

No new leukemia news. Just sitting and walking. 

"Do not dwell in the past.  Do not dream of the future.  Concentrate the mind on the present moment." Buddha

Day 23 - July 31, 2012

I enjoyed a fun visit from Steve Johnson,  fellow soldier, Joyse Witheridge,  now a Brevard friend, Rick Ciordia,  Griffin High School friend, Ike, and Jane. 

I continue to just sit and wait for next Monday when they will check blood marrow to see if the chemo did it.   After that,  we will see what is next.  Opps, Cam, I am not just sitting as I  walk these halls each day.

"Don't sweat the petty things and don't pet the sweaty things." - George Carlin

Day 22 - July 30, 2012

The doctors take turns having floor duty here in the hospital to allow others time for office calls etc. which means that I get multiple opinions on what's next.  Today the doc mentioned that I am 3 to 4 weeks from dismissal and that the goal is to get back to Myelodysplastic Syndrome which means I would be free of leukemia cells within the marrow. He seemed to think that an outpatient regimen consisting of Vidazo might be the solution for the future and not a bone marrow transplant.  Another opinion which I will discuss with my main doc. 

Not sure I can express my feelings when  Steve Johnson, old friend, ally, brother, and fellow soldier visited today. We had many assignments together in our careers which included South Korea and the Pentagon.   Steve drove his RV from Cedar Island near the Outer Banks to here today which is a 7 hour drive and is about as long as one can drive and stay in NC.  Thanks, Bro, good to see you. Lots of memories, especially boating onThe Potomac River.  See you again tomorrow.

"The past is a ghost,the future is a dream, and all we have is now." -Bill Cosby

Day 21 - July 29, 2012

The second round or do over with the chemo is a done deal.  Once again, it is time to wait and then in about 7 to 10 days find out if the chemicals have knocked the marrow cells down to zero and then to ensure that the good ones are growing back.   I still have no significant side affects, however, next week when I have no immune system because of the lack of white cells, we will be on the lookout for infections.  I guess in GA one would say I am floating on the Hooch or in NC I would be floating on the French Broad which happens to flow the opposite direction of most rivers.

All that aside,  I had a fun time with all  four grandchildren via SKYPE today.  It was great to see Julia, Sara, Laurel, and Clay on my PC and talk to all of them live and in color.  What great kids!  Thanks for calling and telling me about your trip to the zoo. Giraffes eating out of your hand while you are in your car in Charlotte, NC?  Really? 

 

Lisa, our best Brevard friend,  and Jane visited today.   Lisa had just been visiting the Grand Canyon and Sonoma, AZ and told stories that reminded of our great family trip to the Canyon for Jane's 60th.    I have heard talk that we may be headed to Key West for my 70th. 

 

"Just cause you got the monkey off your back doesn't mean the circus has left town."  George Carlin

Day 20 - July 28, 2012

I started on my last IV jug of chemo today and will finish in 24 hours.  Then, once again, it will time to wait and see if my cell count in the bone marrow drops to  zero and then builds the good cells.  It will be checked on day 14 from the restart which will be around Monday, 6 August.

 

Thanks  to Glenda from NGC for explaining chemo head to me.  I think I have had it and did not recognize the affects even though I have been claiming not to have any.    I think it is kicking in tonight after the fourth jug.  My favorite RN sang Christmas carols and the graduation song to me tonight.  Strange, but I think one has to be to work here. 

 

BTW the chaplin here who is the NGC graduate tells me that NGC&SU will soon be NGU.  Is that true, Liz?  I have been in here so long that it could be old news.  Did not mean to drift off course but I am.

Guess I will spend the remainder of my time watching the O's all day on the tube.  I was disappointed today when beach volleyball turned out to be the guys but will now look forward to  the girls. 

Speaking of Strange:

"I have learned silence from the talkative, toleration from the intolerant, and kindness from the unkind; yet, strange, I am ungrateful to those teachers.  Khalil Gibran 

G'Night

Day 19 - July 27, 2012

As the doc said, "We are just looking for 30 days of boredom."  So far, that's what is happening and today was another.  I did have a few of the usual transfusions.  For lunch I was served  platelets and pizza followed by a couple of units of blood. 

Short notes:

Cam, I walked  1.5 miles today which is 36 laps around this floor.  People are talking.

 

Jane visited and straightened up my dorm room. 

I continue to be the "King of Da Nile" and have no side affects or affects from AML or the chemo.

"A teacher is a person who never says anything once."  Howard Nomerou

Day 18 - July 26, 2012

Today was National Chili Dog today so Joyse and I enjoyed something besides hospital food.

 

Buddy Corbin, the hospital chaplain and fellow NGC graduate, walked several laps this morning. He is a good philosopher and an enjoyable conversationalist.

I have no aches and pains  or any side affects at this time, just waiting for the time to have some results from this round of chems which will probably be around 10 August.   I have now completed the two doses of Daunorubicin and have to take three more days of Cytabine. This round will be completed by Monday, 30 July which is followed by the waiting period.  One has to be on drugs to understand all this crap.  Right now, this could be like being in 11 foot tall elephant grass and trying to determine the exact location coordinates so that one  coulld call in the fast movers.  Where was my GPS in 1968?  Not real  sure of my location at this point.  

 "The  weather is here, wish you were beautiful."  J. Buffet

Day 17 - July 25, 2012

I am now completing day 2 of the Induction phase 1 redo which consists of two days of the famous chemodrusitg, Daunorunorubicin (Daw-noe-ROO-bi-sin), and two days of Cytarabine which is given the first two days of the Induction phase.   The Induction Phase first drug was named after a chef  on the cooking channel.  This whole proces is rather strange as one feeels normal so you just here and take medicine in order to feel bad so you will feel normal again.

The only real side effect so far is a fuzzy brainy feeling which gives one the ability or excuse to say most anything in the presence of most anyone. Seems to concern Jane at times.  Jane and Joyse, good friend who lived beside us in VA  and has now moved to Brevard,  visited today.  They will team me which will help "him"  keep his morale up. 

I appreciate all the encouragement and prayers from all of you.  Helps keeps one eye one the tiger.

"The only way out is through" R. Frost (Suggested by son-in-law, Kevin)

Day 16 - July 24, 2012

Reporting Error:

Well, let's take a step back, breathe and move forward.  the docs were a little premature on the news last night.  After complete analysis,  the lab determined that there are  20% leukemia cells left when 5% is the goal.  So I am now on chemo for five more days using the same chems as before. It turns out that most need  the second round.  After this, we proceed with the consolidation phase.  Hell, I was going to be sitting here anyway, might as well be doing something.  Sorry for the false reporting last night.  The second round will fix this situation.

Cam,  I will dance!

Wonderful visit from Amy, Ike, Jane, and Joyse today.  You are all troopers!

"Bad news does not improve with age."  General Creighton Abrams (U.S. Army Ret) ,CG US Forces, instructions to his staff in VietNam - May 1969  (Heard it in person)

Day 15 -July 23, 2012

Preliminary good news: 

Our Doc of the week visited with us today. He stated that a preliminary analysis  showed that that my bone marrow was empty of all cells.   This what is supposed to happen as a result of the chemo treatment.  HOOAH

The future will consist of 7 to 10 more days here at Mission hospital to ensure that I am free of infections as I now have no immune system. After that I can go home for a week or two and return for a short course in chemo which is  about 5 days  in length.

I now am leaving the Induction Phase of treatment and entering the Consolidation Phase which will include a bone marrow transplant from an unknown donor as I have no sibling match.  This means several weeks in the hospital and 3 months staying near the hospital.  I asked if it could be done in Key West.  Doc has no sense of humor.  The transplant is done in large hospitals in Duke,  Chapel Hill, Atlanta, Rover and other large cities.  Quite a long process but I will do it. It will be just another chapter in the book and I want to  see my girls  raise teenagers.

Had a great surprise visit from another old high school friend, Richard Childers.  Really brought back memories which included our best friend, Jim Vance who as a marine pilot was killed when he rolled his F4 into Jacksonville many years ago.  We understand it was a hydraulic failure.  Thanks for stopping by, Richard.

Amy returned for another visit before returning to Huntsville, NC where many residents work for NASCAR.  Many of the parents of her students change tires, wipe windshields, and pour gas for a living.

Ike and Jane competed the visitors for the day.  Quite a party!

Felt a little chatty today.

"I tried being reasonable,  it didn't work."  Clint Eastwood.

 

Day14 - July 22, 2012

Today I completed a critical step along this  path to recovery.  A blood marrow sample was taken today via a long needle into the hip bone.  woooooo!  It will be sent a lab in Williamson, GA and analyzed to determine if  the chemo accomplished its mission which was to reduce all cells to 0.  This would be a nice time to pray.

Joyse Wihtheridge,  our friend who lived beside us in  VA  for over 10 years, came to visit.   She has recently moved from JAX to Brevard, NC.  It is good to have near again. 

For the Bulls:  Joyse's neighbor in JAX,  we will help her in any way possible.

Cam, Joyse, and I walked the halls before Cam left for Cleveland.

" Courage is being scared to death and saddling up anyway," - John Wayne

Day 13 - July 21, 2012

Had a great visit today with old high school friends, George Gassert and Gerry Bilbro.  It was fun to discuss old times. 

A ray of sunshine passed through here today, my daughter, Cam, along with Ike,  We walked and talked.  One cannot have the mully grubs with her around. 

I read my hospital report which chronicles my stay here.  the only thing notable was a statement bu my doc which said, "Doug enjoys Bombay and tonic." 

Medically there is no real new news.  Everything that has happened is either, "expected or planned.

"Faster horses, older whiskey more money." Tom T. Hall

 

Day 12- July 20, 2012

More transfusions today and the fever has subsided.

The nurses here are great and many of them have that distinct Smokey Mountain accent. One said last night, " I am going to jus t let you be."  I like being be.

Ike stopped by with a good smelling taco from the Pink Taco Truck. Maybe later on., Ike.

No other news except that I appreciate your thoughts and  prayers.

"Pick up thou bed and walk"  - JESUS CHRIST  AND CAM CHRISTOPHER

 

Day 11 - July 2012

Quiet day with just a couple transfusion.   Fever comes and goes with no cause found.

"Life is like tire  swing."  J. Buffet

 

Day 10 - July 18,2012 

For the first time, I felt some side effects from the chemo which consisted of simple fatigue, but nothing unbearable.  Sorry if I was unpleasant to  anyone,  you will just have deal with it. 

Rev. Guy Sales, former assistant minister at the first Baptist Church in Griffin, GA. stopped by.  He is now the minister of the First Baptist Church of Asheville.  He, or course, was sent over by Aunt Gail. The visit was appreciated.

Ike stopped by this afternoon to  ensure that I walk even though I did not feel like it. 

I did have the platelet transfusion last night at about 0200 which may have contributed to the fatigue.  Also had two units of blood today as red count was low. This monitoring is why I am here.

Not much new, just siting here swapping thumbs.

A father's advice to his kids when they went off to college.

"If you are tired, rest.

If you are hungry, eat.

If you sick, go the doctor."  

Doug Wheeless

Day 9 - July 17, 2012

I finished the chemo treatment today and so now I get to spend 20 days or so here under observation  to see if it works and to ensure that all side effects are handled immediately.  So far all is proceeding as planned.   I will get a platelet transfusion tonight as they are getting rather low.  I now have no IV and walk the halls free without any tower or anything.  I've been told that I look like just another visitor, only better dressed.

I need to give a special recognition to Ike for his attentiveness and regular visits.  He has become a real morale booster which I appreciate very much.  He stops by at lunch each day and eats here in the room in spite of his busy work schedule. Last night, he brought organic flax cereal and milk along with a package of chocolate booster drinks plus a milk shake.   Yes, Ali, I am now eating flax!

"In three words I can sum up everything I've learned about life;  it goes on."  Robert Frost

Day 8 - July 16, 2012

Just another normal day at camp.  No side effects except a little fuzziness at lunch.  One shot neat would have helped.  I am completing my last bag of Cytarabine chemo which I have been taking via IV for 6 days.  Tomorrow I will be finished with the chemo and will just sit and wait to see if it takes.  In other words, kills all the bad and good cells which will allow the good ones to grow back without the bad. 

My test for a blood marrow match came back today so Brother Dave's should be back soon and we will know if he can be my donor or if I will have to be subject to the national pool which takes 3 to 6 months to complete.  I have asked him not to get hit by a beer truck during this time. 

As this time in the process, I will start receiving blood transfusions to ensure that levels do not drop too fast.  This is still the Induction Phase which will last until about 8 August when I enter the so called consolidation phase.  How about the Freedom Phase after that?

By the way, my friend from Griffin High, Rick Ciordia,, retired anaesthesiologist, said he would now nickname me Chemosaybe as Tonato use to call the Lone Ranger, Kemosahtee. Hey, do you remember what Tonto said when the Lone Ranger said," Tonto, we are surrounded by 10,000 Indians what can we do?"  Tonto replied, "What you mean WE, White Man,"

Jane dropped by today with PJ.  She thought I wanted pajamas but actually the text request from me was for Prune Juice.  A hazard from the handful of iron pills taken daily. 

"Life is more manageable when thought of as a scavenger hunt rather than a surprise party."- Lewis Grizzard

Day 7 - JULY 15, 2012

Only two more days of chemo and then one sits and waits to see if it takes.  It appears to be easing in and so far with no noticeable side effects.  Cam, I did walk a mile and a half today and only collided with one nurse and just spilt a little coffee on her.

I am gaining weight as the mess hall puts out good chow and Judy makes sure that I don't necessarily have to eat what's on the menu. All vital signs continue to be good.  I have given them so many times that I am surprised that I have any left. I must also be getting plenty of sleep as I am asked about it at least 8 times per night.

I appreciated the visit from Gail Hammock, Jane's sister, and Anne Manley, Jane's sister-in-law who drove up from Griffin. They were upbeat and fun and even brought great gifts including shirts that can be worn with wires sticking out.  I now have plenty.  They also brought a book from a wornderful Griffin friend, Carole Anne Marshall, entitled, "The Demon-Haunted World" by Carl Sagen.  I think I have seen them in the halls here.  Jane  made her usual appearance which I greatly appreciate.  She said that they announced in church that I was the only one in the hopital.  What a great, damn priviledge.

"Breateh In, Breathe Out, Move On" - Jimmy Buffett

 

 

Day 6 - July 14, 2012

Today was just a continuance of the dripping chemo which will continue for another 2 or 3 days.  So for I still do not have any side effects such as fatigue or flu like symptons.  I do take steroid pills along with the chemo which creates a hell of an appetite.  Perhaps I will bullk up for those long drives.

The highlight of the day was a visit by my daughter, Cam, and her husband, Scott who live in Cleveland, GA.  They left my 2 grandchildren, Laurel 6 and Clay 3, and their 3 dogs with Scott's parents.  Cam is a physical therapist and ensres that I am walking these halls and doing other exercises each day. So this afternoon I walked 12 laps aroung this hospital floor which is a 1/2 mile. Doesn't sound like much except the reputitous laps make it seem longer.  Lisa, our wonderful friend from Brevard also visited and brought a book which advises on how I can keep or obtain my Emotional Balance.  I am sure that will be helpful in this ordeal.  Ike and Jane were also here so we had a good time and did not get called down by the nurses.

After that, I watched a complete Braves game which I have not taken time to do this year but I sure have time to do so now.  Braves won - Beat Mets in close game.

Guess I am in to Amish Quotes- "All the water in the world cannot sink my boat as long as it's on the outside."

 

Day 5 - July 13, 2012

I have completed the last serving of the three doses of Daunorubicin which is given through an IV via a syringe about the size of the one my Dad used on cattle.  I am continuting with Cytarabine for another 3 or 4 days which is given continuously throgh the IV.  They put two ports into my chest so that no more sticking is needed which is good.  So far I have no side effects and feel the same as I did when I arrived at this camp.  I could probably still hit the golf ball at least over 220. 

My main doctor stopped by today and proclaimed that everyathing was proceeding as planned.  I  believe that I will continue to folloe that. 

Had a  wondeful visit again today from  my daughter, Amy, and my grandaughter, Julia.  There is no moping around when those two are near.  Jane made her usual helpful visit with clothes and pogey bait.  I am not losing weight as I am hungry and get special treatment from the mess hall. For example, today I had a big cheesburger with onion rings while others had limp chicken.  Julia made my favorite which is banana bread made with my grandmother's recipe,

Next there was a great visit from my old Griffin High School friend, Rick Ciordia, and his wife Paige.  Rick and Paige only live about 20 minutes from us but we did not discover this until last month as out 50th high school reunion.  I played golf at Rick's very beautiful Champion Hills Golf Club with him before this venture.  It is good to have old friends nearby,

Cam and Scott, the parernts of my other set of grandchildren will be by tomorrow so there is no slack time around here,  Best wishes to you all.

"If you find a pathway with no obstacles,  it probably doesn't lead anywhere."*

*Amish Proverb - Suzanna Fisher

 

 

Day 4 -  July 12, 2012

Had a wonderful visit from my daughter, Amy Peters, and my grandaughter, Julia Peters, from Hendernsonville, NC today.  Julia  made me a short timers calendar as I have less than 30 days left.  It has blocks to check to ensure that I excercise twice per day. 

All is well and I feel normal.  I finished the three day med and have four left on the other.  This treatment is kind of like war.  The  chemo kills the good red, white, and platelet cells along with the bad and then the good cells should return after it is sorted out.

So far this is a boring experience which is okay with me.  Iam running up my e-book bill as I have completed the trilogy of " Fifty Shades of Grey."  Not a great book for the isolated hospital room!

It is once again a small world.  I met the hospital chaplin who is Buddy Corbin, NGC 1969.  His son, James, graduated from NGC in 2002. Great guy and is doing a good job.

I do not have to wear a hospital gown so stop by if you are in this hood. 

Day 3 - July 11, 2012

Today was highlighted by visit from my brother David and his wife Jeanie.   David had his blood donor candidate sample taken to see if he qualifies as my bone marrow donor.  Guess we will see if mom and dad were telling the truth.

Completed one day of chemo with no apparant side effects.  I still feel normal bui the doc said be patient and that would change.  Currently the docs prediction of 30 days of boredom is proving to be true.  Hopefully that will just continue.

Appreciaate the toughts and prayers from everyone. I appreciate the prayers  and comments from family and freinds which  have been great and the wonderful thoughts and prayers from my NGC brothers and sisters. I had a great visit from Larry and Marie Stover on Monday which was very much appreciated.  Larry looks great after his scarry experience.

All is well nad I hope all is well with you.  As they said in Hunger Games, "May the odds be in your favor."    Doug

Day 2 July 10, 2012

Today is really Day 1 as the actual chemo treatment started this afternoon at 1733.  I am taking two chemotherapy meds which are Daunorubicin and Cytarbine.  The first is given continuosly for seven days by IV and the second for three days by pushing the med through the IV with the biggest syringe you have ever seen.  The morning began at 0600 with platelet  infusions and then the installation of a double port so that IVs and blood samples can be given without additional sticking which is a good thing.  I am still feeling strong and vigorus. Side effects such as feeling lousy are said  to start in about 7 days. So today the journey really started and I am glad to get the road on the show.   Perhaps there will be more philosophy as the chemicals kick in.

Day One July 9, 2012

Well today it starts.  I will start the IV soon followed by a blood transfusion.  All whiate, red and platelet counts are low which is why I am here.  Dinner was served at 4:30 so that is an adjustment for the future of this stay.  New preacher stopped by to visit.  Cam and Jane have been a big help.  This will be a long grind but all involved are vey optimistic.  Tomorrow there will be a port put in so that I will not have to be restuck for various things such as chemo and transfusions.  I feel good which is a positive sign.  Treatment will be 7 days of two meds followed by 3 days of another.  Then the remainder of the 3-0 days will be to watch for problems during this Induction phase.   After that will be the consolidation phase which is more chemo or a bone marrow transplant.  Uncle Dave has agreed to be the donor if he is a match.   More tomorrow.

Pre-Chemo Buzz cut! By my daughter, Cam.

Family came to Brevard for some pre-hospital support.